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Last Updated: 2001-07-30 17:37:00 EDT (Reuters Health)
LONDON (Reuters Health) – Although most patients with congenital heart disease know a great deal about their condition, important areas of knowledge appear to be lacking, Belgian researchers report in the July issue of Heart.
Dr. Philip Moons from Katholieke Universiteit Leuven and colleagues collected data from 62 men and women, median age of 23 years of age, with congenital heart disease. The subjects completed a questionnaire, developed by the researchers, that covered four basic areas: the disease and its treatment; prevention of complications; physical activities and reproductive issues.
The researchers found that more than 80% of the patients were knowledgeable about their treatment, frequency of follow-up, dental practices, vocational choices, contraception and the risks of pregnancy.
In addition, most patients could name their condition, knew about the possibility of recurrent endocarditis, and understood the appropriateness of different physical activities.
However, fewer than 50% of the subjects were knowledgeable about the purpose of medical follow-up, symptoms of deterioration, or the definition, signs and risk factors for endocarditis. Also, fewer than half understood the impact of smoking and alcohol consumption, the inheritability of their condition and the suitability of an intrauterine device for contraception.
"Because this lack of knowledge may have harmful consequences, centers caring for adults with congenital heart disease should invest in adequate and structured patient education in order to improve the outcome in this population," Dr. Moons and colleagues advise.
Heart 2001;86:74-80.
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